The Resource Library includes carefully selected resources on topics related to alternatives to guardianship, supported decision-making, guardianship, transition planning, and transfer of IDEA rights for students with disabilities. The resources contain personal stories, videos, briefs, presentations, manuscripts, and much more.
You can search for resources under the following categories: self-advocacy and youth, parents and caregivers, professionals, general resources, law and policy analysis, and empirical research. Use the plus sign on the left to expand each category.
If you are having trouble finding the resources you need, please contact us at youthvoice@umb.edu.
For Self-Advocates & Youth
Self-Advocacy Materials
Transition
- Age of Majority
- A Legal Guide for Individuals with Developmental Disabilities and their Families Transitioning to Adult Services
- Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood (2016)
Supported Decision-Making
- A video of self advocates speaking about SDM and health titled: Supported Decision-Making and Taking Care of Your Health (Self Advocate Coalition of Kansas and The Arc of Douglas County, 2024)
- A video of Derek Heard’s supported decision-making journey – Longer Version (2022)
- A video of Derek Heard’s supported decision-making journey – Shorter Version (2022)
- In Conversation with Judge Glen: Youth get perspectives about guardianship and alternatives from the bench (2022)
- An example of a Supported Decision-Making Agreement form developed by the Center for Public Representation
- Advocates as Leaders: “My Voice Counts”: Supported Decision Making An Alternative to Guardianship: A Self Advocate’s Guide to Supported Decision Making (2017)
- Helpful resources to get started with Supported Decision Making (2020)
- Supported Decision-Making
- The Right to Make Choices: International Laws and Decision-Making by People with Disabilities [Easy Read] (2016)
- Who’s in Charge Here? [PowerPoint] (2020)
- Why Supported Decision Making Matters and How to Get Started (2020)
Alternatives to Guardianship
- Self-Advocacy Materials: Alternatives to Guardianship and Guardianship (2012)
- Youth Ambassadors Spread the Word on Alternatives to Guardianship
- 7 Facts About Guardianship
- Youth Shares a Story about Becoming Her Own SSI Payee
Ending Guardianship
- Supported decision making and guardianship termination (2020)
- The Process of Terminating Guardianship (Using Supported Decision-Making) (2020)
Personal Stories
- Supported Decision Making: Gabby’s Story
- Supported Decision Making in Action: Dawn and Belinda’s Story
- Supported Decision Making: Positive Exposure
- Youth Ambassador Stories about Supported Decision-Making
Videos
- Supported Decision-Making Training Videos from the Southwest Institute for Families and Children (2020)
- The Self-Determination Channel. Dedicated to sharing self-advocate voices about using choice and control in their lives. Individuals can connect with other self-advocates and people who support them. The Self-Determination Channel is a project of Wisconsin Board for People with Developmental Disabilities.
For Parents & Caregivers
Age of Majority and Transfer-of-Rights
- Age of majority, Newton Public Schools. (n.d.)
- Age of majority: TURNING 18, Wrightslaw Way (2016)
- Coming of Age in Massachusetts: A Legal Resource Guide | 3rd Edition Misilo, F. (2013)
- Getting ready for when your teen reaches the age of majority: a parent’s guide , Center for Parent Information & Resources (October, 2015)
- PACER Center. (2015) Prepare your child for age of majority and transfer of rights (2015)
- Transfer of Parental Rights at Age of Majority, Wrightslaw Way (2019)
- State-Specific Transfer-of-Rights Rules. Guardianship Alternatives and Transfer-of-Rights, Institute for Community Inclusion (2022)
Supported Decision-Making
- A video of Derek Heard’s supported decision-making journey (2022)
- In Conversation with Judge Glen: Youth get perspectives about guardianship and alternatives from the bench (2022)
- Consider the Alternatives: Decision-Making Options for Young Adults with Intellectual Disabilities. Think College Insight Brief, (2019)
- Supported decision-making and alternatives to guardianship by families. TASH Connections, Brill, K. (2017).
- Supported Decision Making Pilot Project: Your Curriculum Guide on Supported Decision Making from the Southwest Institute for Families and Children
- Supported Decision-Making and education
- Transfer of Rights: How Parents, Families, and Caregivers of Youth with Intellectual and Developmental Disabilities Can Prepare for this Exciting Opportunity. Issue 1, Guardianship Alternatives and Transfer-of-Rights (2021).
Transition
- A transition guide to postsecondary education and employment for students and youth with disabilities U.S. Department of Education, Office of Special Education and Rehabilitative Services. (2020)
- A Transition Services Online Manual (2nd ed.) Disability Law Center (2012)
- Preparing for the Transfer of Rights: Taking a Closer Look at Guardianship and its Alternatives. Issue 2, Guardianship Alternatives and Transfer-of-Rights (2021)
- TIPS: Transition Information for Parents and Students with IEPs, Federation for Children with Special Needs. (n.d.)
Videos
- Supported Decision-Making Training Videos from the Southwest Institute for Families and Children (2020)
For Education Professionals
Alternatives to Guardianship Resources
- Alternatives to guardianship toolkit. University of Montana Rural Institute for Inclusive Communities (2018), Baldry, T
- Interview with Jerri Davison & Charlie Walters [Interview]. Independent Living Research Utilization (2018), Fuchs, T.
- “The right to make choices”: How vocational rehabilitation can help young adults with disabilities increase self-determination and avoid guardianship. Journal of Vocational Rehabilitation, Martinis, J. (2015)
- A2G Map Flyer
Legal Resources
- The comprehensive guide to special education law. Jessica Kingsley Publishers Giuliani, G. A. (2012)
- What judges need to know about supported decision-making, and why. Judges’ Journal, 58(26) Glen, K. B. (2019)
Transition Resources
- State-Specific Transfer-of-Rights Rules. Guardianship Alternatives and Transfer-of-Rights, Institute for Community Inclusion (2022)
- Massachusetts transition timeline. [Chart]. University of Massachusetts Boston, Institute for Community Inclusion 2012, Hart, D., Nemeth Cohen, R., & Dragoumanos, M.
Law & Policy Analysis
Cannon, Y. Z. (2011) Who’s the boss?: The need for thoughtful identification of the client(s) in special education cases.
Journal of Gender, Social Policy & the Law, 20(1). 1-79
Crane, S. A. (2015) Is guardianship reform enough? Next steps in policy reforms to promote self-determination
among people with disabilities. Journal of International Aging Law & Policy, 8, 177-210
Glen, K. B. (2017) Piloting personhood: Reflections from the first year of a supported decision-making project.
Cardozo Law Review, 39, 495-519
Hyman, E., Rivkin, D., & Rosenbaum, S. A. (2011) How IDEA fails families without means: Causes and corrections from
the frontlines of special education lawyering. American University Journal of Gender, Social Policy & the Law, 20(1), 107-162
Kanter, A. (2015) Guardianship for young adults with disabilities as a violation of the purpose of the Individuals with
Disabilities Education Improvement Act. Journal of International Aging Law & Policy, 8. 1-68
Lanier, E.C. (2019) Understanding the gap between law and practice: Barriers and alternatives to tailoring adult
guardianship orders. Buffalo Public Interest Law Journal, 36, 155-215
Martinis, J. & Blanck, P. (2019) Supported decision-making: From justice for Jenny to justice for all. Something Else Solutions Press
National Council on Disability (2018). Beyond guardianship: Toward alternatives that promote greater self-
determination for people with disabilities
National Council on Disability (2019). Turning rights into reality: How Guardianship and alternatives impact the
autonomy of people with intellectual and developmental disabilities
Pringles, C. I. (2011) Throwing a lifesaver without going overboard: Considering alternatives to guardianship. Vermont
Bar Journal, 37-Spring, 21-23
Raley, S. K., Shogren, K. A., Martinis, J. G., & Wehmeyer, M. L. (2020) Age of majority and alternatives to guardianship:
A necessary amendment to the Individuals with Disabilities Education Improvement Act of 2004. Journal of Disability Policy Studies, 1-11
Rood, C. E., Kanter, A., & Causton, J. (2015) Presumption of incompetence: The systematic assignment of guardianship
within the transition process. Research and Practice for Persons with Severe Disabilities, 39(4) 319–328
Sarkar, T. (2015) Intellectual and developmental disability: Transition to adulthood and decision-making process.
International Journal of Child Health and Human Development, 8(4), 517-527
Smith, M. S. & Stein, M. A. (2021) Transfer of parental rights: The impact of section 615(m) of the Individuals with
Disabilities Education Act. Drexel Law Review, forthcoming
Theodorou, E. J. (2018) Supported decision-making in the Lone Star State. New York University Law Review, 93, 973-1013
Zhang, D., Walker, J. M., Leal, D. R., Landmark, L. J., & Katsiyannis, A. (2019) A call to society for supported
decision-making: Theoretical and legal reasoning. Journal of Child and Family Studies, 28, 1803-18
Empirical Research
Bradley, V., Hiersteiner, D., St. John, J., & Bourne M. L. (2019) What do NCI data reveal about the guardianship status of
Brady, A. M., Burke, M. M., Landon, T., & Oertle, K. (2019) Siblings of adults with intellectual and developmental
disabilities: Their knowledge and perspectives on guardianship and its alternatives. Journal of Applied Research in
Intellectual Disabilities, 32(5), 1078-1087
Jameson, J. M., Riesen, T., Polychronis, S., Trader, B., Mizner, S., Martinis, J., & Hoyle, D. (2015) Guardianship and the
potential of supported decision-making with individuals with disabilities. Research and Practice for Persons with Severe Disabilities, 40(1), 36–51
MacLeod, K. (2017) “I should have big dreams”: A qualitative case study on alternatives to guardianship. Education and
Training in Autism and Developmental Disabilities, 52(2), 194–207
Millar, D. S. (2013). Guardianship alternatives: Their use affirms self-determination of individuals with intellectual
disabilities. Education and Training in Autism and Developmental Disabilities,48(3), 291–305
Millar, D. S. (2014a). Addition to transition assessment resources: a template for determining the use of guardianship
alternatives for students who have intellectual disability. Education and Training in Autism and Developmental Disabilities, 49(2), 171–188
Millar, D. S. (2014b). Extending transition to address guardianship alternatives: an issue concerning students who have
intellectual disability. Education and Training in Autism and Developmental Disabilities, 2014, 49(3), 449–463
Pell, E. (2019) Supported Decision-Making New York: Evaluation report of an intentional pilot
Plotner, A. J. & Walters, C. B. (2021) Perceptions of district- and school-level special education leaders on guardianship
and adult decision-making support. Journal of Disability Policy Studies, 1-11