The Resource Library includes carefully selected resources on topics related to alternatives to guardianship, supported decision-making, guardianship, transition planning, and transfer of IDEA rights for students with disabilities. The resources contain personal stories, videos, briefs, presentations, manuscripts, and much more. 

You can search for resources under the following categories: self-advocacy and youth, parents and caregivers, professionals, general resources, law and policy analysis, and empirical research. Use the plus sign on the left to expand each category.

If you are having trouble finding the resources you need, please contact us at youthvoice@umb.edu.

For Self-Advocates & Youth

Self-Advocacy Materials

Transition

Supported Decision-Making

Alternatives to Guardianship

Ending Guardianship

Personal Stories

Videos

  • Supported Decision-Making Training Videos from the Southwest Institute for Families and Children (2020)
  • The Self-Determination Channel. Dedicated to sharing self-advocate voices about using choice and control in their lives. Individuals can connect with other self-advocates and people who support them. The Self-Determination Channel is a project of Wisconsin Board for People with Developmental Disabilities.

For Parents & Caregivers

 Age of Majority and Transfer-of-Rights

Supported Decision-Making

Transition

Videos

For Education Professionals

Alternatives to Guardianship Resources

Legal Resources

Transition Resources

Law & Policy Analysis

Cannon, Y. Z. (2011) Who’s the boss?: The need for thoughtful identification of the client(s) in special education cases.

Journal of Gender, Social Policy & the Law, 20(1). 1-79

Crane, S. A. (2015) Is guardianship reform enough? Next steps in policy reforms to promote self-determination

among people with disabilities. Journal of International Aging Law & Policy, 8, 177-210

Glen, K. B. (2017) Piloting personhood: Reflections from the first year of a supported decision-making project.

Cardozo Law Review, 39, 495-519

Hyman, E., Rivkin, D., & Rosenbaum, S. A. (2011) How IDEA fails families without means: Causes and corrections from

the frontlines of special education lawyering. American University Journal of Gender, Social Policy & the Law, 20(1), 107-162

Kanter, A. (2015) Guardianship for young adults with disabilities as a violation of the purpose of the Individuals with

Disabilities Education Improvement Act. Journal of International Aging Law & Policy, 8. 1-68

Lanier, E.C. (2019) Understanding the gap between law and practice: Barriers and alternatives to tailoring adult

guardianship orders. Buffalo Public Interest Law Journal, 36, 155-215

Martinis, J. & Blanck, P. (2019) Supported decision-making: From justice for Jenny to justice for all. Something Else Solutions Press

National Council on Disability (2018). Beyond guardianship: Toward alternatives that promote greater self-

determination for people with disabilities

National Council on Disability (2019). Turning rights into reality: How Guardianship and alternatives impact the

autonomy of people with intellectual and developmental disabilities

Pringles, C. I. (2011) Throwing a lifesaver without going overboard: Considering alternatives to guardianship. Vermont

Bar Journal, 37-Spring, 21-23

Raley, S. K., Shogren, K. A., Martinis, J. G., & Wehmeyer, M. L. (2020) Age of majority and alternatives to guardianship:

A necessary amendment to the Individuals with Disabilities Education Improvement Act of 2004. Journal of Disability Policy Studies, 1-11

Rood, C. E., Kanter, A., & Causton, J. (2015) Presumption of incompetence: The systematic assignment of guardianship

within the transition process. Research and Practice for Persons with Severe Disabilities, 39(4) 319–328

Sarkar, T. (2015) Intellectual and developmental disability: Transition to adulthood and decision-making process.

International Journal of Child Health and Human Development, 8(4), 517-527

Smith, M. S. & Stein, M. A. (2021) Transfer of parental rights: The impact of section 615(m) of the Individuals with

Disabilities Education Act. Drexel Law Review, forthcoming

Theodorou, E. J. (2018) Supported decision-making in the Lone Star State. New York University Law Review, 93, 973-1013

Zhang, D., Walker, J. M., Leal, D. R., Landmark, L. J., & Katsiyannis, A. (2019) A call to society for supported

decision-making: Theoretical and legal reasoning. Journal of Child and Family Studies, 28, 1803-18

Empirical Research

Bradley, V., Hiersteiner, D., St. John, J., & Bourne M. L. (2019) What do NCI data reveal about the guardianship status of

people with IDD?

Brady, A. M., Burke, M. M., Landon, T., & Oertle, K. (2019) Siblings of adults with intellectual and developmental

disabilities: Their knowledge and perspectives on guardianship and its alternatives. Journal of Applied Research in

Intellectual Disabilities, 32(5), 1078-1087

Jameson, J. M., Riesen, T., Polychronis, S., Trader, B., Mizner, S., Martinis, J., & Hoyle, D. (2015) Guardianship and the

potential of supported decision-making with  individuals with disabilitiesResearch and Practice for Persons with Severe Disabilities, 40(1), 36–51

MacLeod, K. (2017) “I should have big dreams”: A qualitative case study on alternatives to guardianship. Education and

Training in Autism and Developmental Disabilities, 52(2), 194–207

Millar, D. S. (2013). Guardianship alternatives: Their use affirms self-determination of individuals with intellectual

disabilities. Education and Training in Autism and Developmental Disabilities,48(3), 291–305

Millar, D. S. (2014a). Addition to transition assessment resources: a template for determining the use of guardianship

alternatives for students who have intellectual disability. Education and Training in Autism and Developmental Disabilities, 49(2), 171–188

Millar, D. S. (2014b). Extending transition to address guardianship alternatives: an issue concerning  students who have

intellectual disability. Education and Training in Autism and Developmental Disabilities, 2014, 49(3), 449–463

Pell, E. (2019) Supported Decision-Making New York: Evaluation report of an intentional pilot

Plotner, A. J. & Walters, C. B. (2021) Perceptions of district- and school-level special education leaders on guardianship

and adult decision-making support. Journal of Disability Policy Studies, 1-11